My Superbowl Experience: It’s All Love”
A moment I will never forget, and a story I can’t believe I’m telling. Imagine being asked “How was the Superbowl?”, hard to do right? Now imagine you get to go for free… I imagine…
Random Tales: #ClubRainbow (aka The Hospital)
I started calling the hospital #ClubRainbow because we use to kick it in there. So many fun memories, which I realize might sound weird, but between the camaraderie, the staff, it was a long, extended,…
The Call: Lung Transplant
“The Call” in the CF world that’s what we refer to as that moment where a person who has been awaiting a transplant officially has lungs ready for them. I know many people who have…
Pulmonary Function Test
PFT (Pulmonary Function Test) is a big part of CF Life. When people ask “what are your numbers” This is what they mean. This test FEV1 – simply put how fast & hard a person…